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Rare Disease Day
Results: 254

#	Item
1	Microsoft Word - Rare Disease Day final 2018_agenda.docx Add to Reading List Source URL: crnd.nd.edu Language: English - Date: 2018-01-23 11:54:10
2	YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, Global Add to Reading List Source URL: globalgenes.org Language: English - Date: 2016-06-14 17:51:44
3	Edelman-DiagnosisDoesntHaveToBeRareLogoV3 Add to Reading List Source URL: www.shire.co Language: English - Date: 2015-09-14 17:42:58 Health Medicine Epidemiology Medical terminology Rare diseases Medical diagnosis Global Genes European Organisation for Rare Diseases Orphan drug Disease Rare Disease Day Draft:Rare Cancers
4	Koller 2012_Pharmaceutical dialogue.pdf Add to Reading List Source URL: www.swiss-economics.ch Language: English - Date: 2012-08-30 05:17:09 Health care Health European Organisation for Rare Diseases Diagnosis-related group Rare disease Rare Disease Day
5	Rare-disease-day; 28. Februar 2013 Actelion launcht eine neue Informationsplattform für Lungenhochdruck! Rechtzeitig zum Tag der seltenen Erkrankungen am 28. Februar startet Actelion Österreich mit einer neuen Informat Add to Reading List Source URL: ruhigatmen.at Language: German - Date: 2013-09-03 06:09:55
6	YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, Global Add to Reading List Source URL: globalgenes.org Language: English - Date: 2016-02-18 20:20:13
7	2015 Information Pack EURORDIS November 2014 Rare Disease Day 2015 – Official Partners – Participating National Alliances Add to Reading List Source URL: pfadvocates.org Language: English - Date: 2015-01-18 11:14:39
8	2012 Global Genes \| RARE Project Year In Review Add to Reading List Source URL: globalgenes.org Language: English - Date: 2015-02-05 16:42:11 Global Genes Project Medical ethics Rare Disease Day Patient advocacy Breast cancer awareness Rare diseases Health Medicine Epidemiology
9	Letter of intent Rare Diseases Nordic Network of Patient Organisations In the spring of 2014, Nordic rare disease patient organizations created the Rare Diseases Nordic Network of Patient Organisations as a way to furthe Add to Reading List Source URL: sjaeldnediagnoser.dk Language: English - Date: 2014-11-16 01:45:18 Medical terms Rare disease Disease Rare Disease Day Patient safety organization Epidemiology Health Medicine
10	Clementia Pharmaceuticals Highlights Role of Patient Community in the Fight Against Fibrodysplasia Ossificans Progressiva (FOP) Company to Host Webcast to Pay Tribute to FOP Community and Recognize Rare Disease Day MONTR Add to Reading List Source URL: clementiapharma.com - Date: 2015-02-24 13:50:44