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Rare disease
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1	UNO SGUARDO RARO – TERZA EDIZIONE Festival internazionale del film a tema malattie rare BANDO DI CONCORSO 2017 La terza edizione di Uno sguardo raro – The Rare Disease International Film Festival si svolgerà a Roma Add to Reading List Source URL: www2.unibas.it Language: Italian - Date: 2017-08-01 05:43:20
2	Rare Disease Registries: Advancing Disease Understanding, Treatments, and Cures CoRDS Christopher Jones Add to Reading List Source URL: globalgenes.org Language: English - Date: 2016-02-18 18:55:42
3	What Is Addison’s? Addison’s Disease is a rare hormonal disorder which affects approximately 6 to 11 per 100,000 people. It affects men and women alike and occurs in all age groups, including children. Addison’s di Add to Reading List Source URL: www.addisonsociety.ca Language: English - Date: 2018-07-20 09:50:31
4	Cambridge International Rare Disease Summit 2016 Robinson College, Grange Road, Cambridge, CB3 9AN Add to Reading List Source URL: camraredisease.org Language: English - Date: 2017-04-24 05:51:19
5	Gift Aid declaration – for past, present & future donations Rare Disease UK is an initiative of Genetic Alliance UK, registered charity numbersand SCO39299 Please treat as Gift Aid donations all Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2016-05-03 10:31:50
6	Rare disease perspectives 2016 Patient focus group report: Wolfram syndrome This study was completed in the first half of 2016, as part of Findacure’s Add to Reading List Source URL: www.findacure.org.uk Language: English - Date: 2016-10-06 09:47:48
7	The NIH Undiagnosed Diseases Program J A M E S P A N • 10 J U N E 2014 Stanford University School of Medicine In the United States, a rare disease defined by the 1983 Orphan Drug Act, is a disease that aﬀects fewer Add to Reading List Source URL: biochem158.stanford.edu Language: English - Date: 2014-06-17 08:45:07
8	Microsoft Word - Rare Disease Day final 2018_agenda.docx Add to Reading List Source URL: crnd.nd.edu Language: English - Date: 2018-01-23 11:54:10
9	Rare disease perspectives 2016 Patient focus group report: congenital hyperinsulinism This study was completed in the first half of 2016, as part of Findacure’s Add to Reading List Source URL: www.findacure.org.uk Language: English - Date: 2016-10-06 09:47:24
10	STATE OF THE ART OF RARE DISEASE ACTIVITIES: HOW TO COLLECT AND BENCHMARK RARE DISEASE POLICY INFORMATION BEYOND THE EU? Paloma Tejada Add to Reading List Source URL: download2.eurordis.org.s3.amazonaws.com Language: English - Date: 2018-05-30 08:23:56