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851	Consultation Response Innovation Pass Pilot Department of Health Response by the Genetic Interest Group and Rare Disease UK The Genetic Interest Group (GIG) is the UK national alliance for all people affected by genetic Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2010-02-15 07:54:39 Epidemiology Drug discovery Clinical research Pharmacology Pharmaceutical industry Orphan drug Rare disease Genetic Alliance UK National Institute for Health and Clinical Excellence Health Pharmaceutical sciences Medicine
852	[removed]Dear Copyright Register Maria Pallante, This letter is in reply to Initial Comments submitted in response to the Copyright Office’s Notice of Inquiry (NOI: Oct. 22, 2012) regarding orphan works. In particular, Add to Reading List Source URL: copyright.gov Language: English - Date: 2013-03-14 16:49:33 Law United States copyright law Data Information Copyright law of the United States Copyright United States Copyright Office Google Orphan works Copyright law Library science Intellectual property law
853	Maria Pallante, Register of Copyright U.S. Copyright Office Library ofCongress Submit electronically at www.copyright.gov/orphan/comment-submission Re: Orphan Works and Mass Digitization (FR Doc[removed]; Copyright Of Add to Reading List Source URL: copyright.gov Language: English - Date: 2013-03-14 16:53:29 Plagiarism Civil law United States copyright law Orphan works Copyright law of the United States United States Copyright Office Moral rights Copyright Orphan works in the United States Copyright law Intellectual property law Law
854	DEPARTMENT OF HEALTH & HUMAN SERVICES National Institutes of Health We are pleased to inform the NPC community of an upcoming clinical trial at the NIH to study the safety and tolerability of vorinostat in adults with N Add to Reading List Source URL: www.parseghian.org Language: English - Date: 2014-09-10 20:05:09 Rare diseases Orphan drugs Nursing research Niemann-Pick disease type C NPC1 Vorinostat Clinical trial Miglustat Niemann–Pick disease Health Medicine Lipid storage disorders
855	REPLY COMMENTS OF FUTURE OF MUSIC COALITION IN RESPONSE TO THE COPYRIGHT OFFICE’S NOTICE OF INQUIRY CONCERNING ORPHAN WORKS AND MASS DIGITIZATION March 06, 2013 Future of Music Coalition (FMC) is pleased to submit thes Add to Reading List Source URL: copyright.gov Language: English - Date: 2013-03-14 16:49:43 Information Copyright Law Orphan works United States Copyright Office Future of Music Coalition Civil law Intellectual property law Copyright law Copyright law of the United States
856	EURORDIS Call for a European Year for Rare Diseases We, rare disease patient representatives from more than 600 patient groups, on behalf of the 30 million people affected by rare diseases in Europe, hereby call upon the Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-10-02 03:27:16 Medical terms Rare diseases European Organization for Rare Diseases Orphan drug Disease Chronic Rare Disease Day Greek Alliance of Rare Diseases Health Medicine Epidemiology
857	Access to Drugs for Rare Diseases in Canada What is a rare disease? A rare disease is defined in many jurisdictions as a disorder that affects less than one in 2,000 persons. There are over 7,000 known rare diseases, man Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2014-09-24 10:24:49 Pharmaceutical sciences Epidemiology Rare disease Orphan drug Chronic Canadian Organization for Rare Disorders Rare Disease Day Health Medicine Health economics
858	Access to Drugs for Rare Diseases in Canada What is a rare disease? A rare disease is defined in many jurisdictions as a disorder that affects less than one in 2,000 persons. There are over 7,000 known rare diseases, man Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2014-09-24 10:25:57 Pharmaceutical sciences Epidemiology Rare disease Orphan drug Chronic Canadian Organization for Rare Disorders Rare Disease Day Health Medicine Health economics
859	For Immediate Release September 24, 2014 CORD Urges Ministers of Health to Adopt Proven Model for Improved Access to Treatments for Rare Disorders Local and international experts agree managed access program is the key t Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2014-09-24 10:18:50 Rare disease Orphan drug Durhane Wong-Rieger Medicine Childbirth Cord blood bank Health Canadian Organization for Rare Disorders Pharmaceuticals policy
860	Summary of the Summit on Access to Drugs for Rare Diseases in Canada Canmore, Alberta, Canada July 20 – 21, 2014 This summit was organized by the Canadian Organization for Rare Disorders. This summary is based on proce Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2014-09-24 10:25:21 Drug discovery Epidemiology Medicine Health economics Healthcare Canadian Organization for Rare Disorders Orphan drug Rare disease Clinical trial Health Pharmacology Pharmaceutical sciences

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