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Rare disease / European Organization for Rare Diseases / Orphan drug / Cystinosis / Disease / Genetic Alliance UK / Rare Disease Day / Health / Epidemiology / Medicine


European Strategy on Rare Diseases is Adopted by Health Ministers of the EU A European strategy that calls upon Member States to implement national plans for rare diseases, before the end of 2013, was adopted by the Coun
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Document Date: 2009-07-19 14:42:12


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Company

European Reference Networks / /

Continent

Europe / /

Country

Ireland / /

IndustryTerm

treatment of rare disorders / /

MedicalCondition

Sarcoidosis / cancers / Fabry Disease / Huntingdon’s disease / Rare Diseases / deletion disease / rare disorders / Cystinosis / adult cancers / Cystic Fibrosis / childhood cancers / rare disease / Motor Neuron Disease / Duchene Muscular Dystrophy / /

Organization

Irish national alliance / European Union / European Rare Disorders Organisation / Council of Health Ministers / Genetic & Rare Disorders Organisation / /

Person

Avril Daly / /

Position

Judy Windle secretary / Chairperson / /

SocialTag