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Genodermatoses
Results: 645

#	Item
561	Edimer Initiates Phase 2 Trial of EDI200 in XLHED-‐Affected Male Newborns -‐-‐ First neonate subject with X-‐linked hypohid Add to Reading List Source URL: edimerpharma.com Language: English - Date: 2013-10-08 08:11:28 Hypohidrotic ectodermal dysplasia Genodermatoses EDA Ectodermal dysplasia
562	The CFC Chronicle Caring, Facilitating & Connecting Volume XVI Number I CFC International Celebrates 15 years Add to Reading List Source URL: www.cfcsyndrome.org Language: English - Date: 2014-03-03 22:38:54 Chlorofluorocarbon Environment Emerging markets Chemistry Cardiofaciocutaneous syndrome Genodermatoses
563	National Organization for Rare Disorders (NORD), with funding by the patient organization, Cardiofaciocutaneous (CFC) International announces Research Seed Money for one, one-year grant ($30,000) for Add to Reading List Source URL: www.cfcsyndrome.org Language: English - Date: 2013-03-25 23:47:14 Cardiofaciocutaneous syndrome National Institutes of Health Rare disease National Organization for Rare Disorders Health Medicine Genodermatoses
564	3rd InternaHonal MeeHng on GeneHc Syndromes of the Ras/MAPK Pathway: Towards a TherapeuHc Approach Poster Abstracts Add to Reading List Source URL: www.cfcsyndrome.org Language: English - Date: 2013-08-11 16:01:59 Genodermatoses Neuro-cardio-facial-cutaneous syndromes Syndromes Neurological disorders Noonan syndrome LEOPARD syndrome Developmental neuroscience PTPN11 Costello syndrome Health Medicine Genetic genealogy
565	Third International Meeting on Genetic Syndromes of the Ras/MAPK Pathway: Towards a Therapeutic Approach Renaissance Orlando at SeaWorld Add to Reading List Source URL: www.cfcsyndrome.org Language: English - Date: 2013-08-11 16:01:54 Genetic genealogy Neuro-cardio-facial-cutaneous syndromes Syndromes Neurological disorders Developmental neuroscience Costello syndrome Neurofibromatosis Noonan syndrome Cardiofaciocutaneous syndrome Health Medicine Genodermatoses
566	Dear [Senator/Representative] [Last Name]: I urge you to introduce the Wound Care Bill for EB patients into the State legislature in an attempt to alleviate the financial hardships of the families. Epidermolysis Bullosa Add to Reading List Source URL: www.ebanusa.org Language: English - Date: 2007-05-16 20:30:53 Emergency medicine Epidermolysis bullosa EB Wound Junctional epidermolysis bullosa gravis Epidermolysis bullosa dystrophica Genodermatoses Medicine Health
567	The Prader-Willi Syndrome Association (USA) Presents: When Your Baby is in the Hospital NICU Add to Reading List Source URL: www.pwsausa.org Language: English - Date: 2014-02-10 11:59:42 Pediatrics Genodermatoses Prader–Willi syndrome Growth hormones Growth hormone treatment Neonatal intensive care unit Hypotonia Breastfeeding Obstructive sleep apnea Health Medicine Syndromes
568	SARI Therapeutic Riding GUIDELINES FOR PHYSICIANS / THERAPISTS CONTRAINDICATIONS AND PRECAUTIONS FOR THERAPEUTIC RIDING The following conditions may represent precautions or contraindications to therapeutic horseback rid Add to Reading List Source URL: www.sari.ca Language: English - Date: 2013-08-23 08:20:05 Genodermatoses Geriatrics Vertebral column Spinal cord Spinal cord injury Klippel–Feil syndrome Spinal stenosis Hypotonia Arnold–Chiari malformation Medicine Health Chiropractic treatment techniques
569	2014 Education Award Program The BCNF is pleased to offer education awards to students in British Columbia living with neurofibromatosis, who currently attend or plan to attend, a post secondary institution of education Add to Reading List Source URL: www.bcnf.bc.ca Language: English - Date: 2014-03-17 13:51:47 Genodermatoses Neurofibromatosis
570	a guide to understanding apert Add to Reading List Source URL: www.ccakids.com Language: English - Date: 2013-05-30 16:44:12 Genodermatoses Apert syndrome Rare diseases Congenital disorders Craniosynostosis Syndactyly Craniofacial team Fibroblast growth factor receptor 2 Cleft lip and palate Health Medicine Syndromes

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