Birmingham / New York / Sydney / Victoria / Melbourne / Linkoping / /
Company
Community Reference Group / Pediatric Orthopaedic Research Group / /
Country
Sweden / United States / Australia / United Kingdom / /
Facility
Curtin University / Sue Hall / Murdoch Children’s Research Institute / Morgan Stanley Children’s Hospital of New York Presbyterian / University Hospital / Telethon Institute / Columbia University / Royal Children’s Hospital / Victorian Rett Syndrome Clinic / University of Western Australia / The Children’s Hospital / Columbia University College of Physicians / Rett Syndrome Multidisciplinary Management clinic / /
IndustryTerm
dairy products / /
MedicalCondition
research investigating scoliosis / Adolescent Idiopathic Scoliosis / spine deformity / disorder / constipation / pulmonary development / scoliosis / very severe scoliosis / Rett syndrome / After scoliosis / idiopathic scoliosis / neuromuscular scoliosis / In Rett syndrome / spinal curvature / chest wall deformity / osteoporosis / epilepsy / neurodevelopmental disorder / booklet Rett syndrome / Before scoliosis / SCOLIOSIS IN RETT SYNDROME A / /
MedicalTreatment
surgery / Surgical treatment / Physiotherapy / occupational therapy / hydrotherapy / spinal surgery / /
Organization
Royal Children’s Hospital / Columbia University / International Rett Syndrome Foundation / Curtin University / University of Western Australia / Perth / University Hospital / Rett Syndrome Association of Australia / Rett Syndrome Association of the United Kingdom / Murdoch Children’s Research Institute / Columbia University College of Physicians and Surgeons / Anaesthetic Unit / RettSearch / Morgan Stanley Children’s Hospital / School of Physiotherapy / Intensive Care Unit / Telethon Institute for Child Health / /
Person
Paige Neus / Eva-Lena Larsson / Ann Papafotiou / Lauren James / David P. Roye / Jeanne M. Franzone / Jacqueline Corona / Gordon Baikie / Helen Leonard / Ian P. Torode / Daniel J. Miller / Anne McKenzie / Jenny Downs / Martine Balkwell / Mirella Sadkowsky / Jill Grey / Tracey Thomas / Julie Trigg / Monique Garcia / Matthew Riedel / ray may / Carolyn Ellaway / Cathey Stanberg / /
Position
orthopaedic surgeon / Deputy Director of the Orthopaedic Department and Director of the Spine Service / General / occupational therapist / Chief / Professor of Pediatric Orthopaedic Surgery / Consumer Research Liaison Officer / senior researcher / physiotherapist / physiotherapist and occupational therapist / surgeon / /
SCOLIOSIS IN RETT SYNDROME A collaboration between parents, clinicians and researchers Contributors to this booklet: