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PatientsLikeMe
Results: 54

#	Item
31	Summary of Responses from a Request for Information: Input on Research Networks Posted June 13, 2013 Updated July 30, 2013 Add to Reading List Source URL: www.pcori.org Language: English - Date: 2014-09-10 09:50:12 Health informatics Healthcare Clinical research Web 2.0 Outcomes research Electronic health record PatientsLikeMe Medical record Medical home Health Medicine Medical informatics
32	Sally Okun, RN, MMHS Sally Okun is the Vice President for Advocacy, Policy and Patient Safety at PatientsLikeMe in Cambridge, MA. She is responsible for the company’s patient advocacy initiatives; she participates and Add to Reading List Source URL: us.cochrane.org Language: English - Date: 2014-01-09 13:49:13 Medical informatics Web 2.0 Hospice PatientsLikeMe Patient safety Patient advocacy Health informatics Pharmacovigilance Medicine Health Medical ethics
33	ALS FAQs WHY IS THERE NOT A CURE FOR ALS? ALS, like Parkinson’s disease and Alzheimer’s disease, is neurodegeneration of the aging nervous system. Although the diseases typically become apparent when people are in th Add to Reading List Source URL: alsbc.ca Language: English - Date: 2013-08-28 19:09:05 Motor neurone disease Stem cells Biotechnology Cell biology Amyotrophic lateral sclerosis Stem cell treatments Cell therapy PatientsLikeMe Primary lateral sclerosis Biology Health Rare diseases
34	Session 4: Social/Digital Media: The Future of Qualitative Data Collection in the Context of Labeling Add to Reading List Source URL: c-path.org Language: English - Date: 2014-05-15 13:32:59 Health World Wide Web PatientsLikeMe Self-care Patient-reported outcome Electronic patient-reported outcome Mass media Clinical Data Management Clinical research Web 2.0
35	ALS FAQs WHY IS THERE NOT A CURE FOR ALS? ALS, like Parkinson’s disease and Alzheimer’s disease, is neurodegeneration of the aging nervous system. Although the diseases typically become apparent when people are in th Add to Reading List Source URL: www.alsbc.ca Language: English - Date: 2013-08-28 19:09:05 Motor neurone disease Stem cells Biotechnology Cell biology Amyotrophic lateral sclerosis Stem cell treatments Cell therapy PatientsLikeMe Primary lateral sclerosis Biology Health Rare diseases
36	Q: My father and grandfather both died from ALS Add to Reading List Source URL: www.alsconsortium.org Language: English - Date: 2013-04-09 10:15:36 Amyotrophic lateral sclerosis PatientsLikeMe Clinical trial Progressive bulbar palsy Health Motor neurone disease Rare diseases
37	Innovations in Stakeholder Engagement Conference Summary Add to Reading List Source URL: www.effectivehealthcare.ahrq.gov Language: English - Date: 2012-01-03 12:01:20 Social information processing Virtual reality Health Information society Technology Online community PatientsLikeMe Virtual community AHRQ Health Care Innovations Exchange Community websites Community building Internet culture
38	Patients Participate! Bridging the gap between information access and understanding In a world where the volume of health-related information is Add to Reading List Source URL: blogs.ukoln.ac.uk Language: English - Date: 2011-10-17 07:23:51 PatientsLikeMe Self-care Mass media Joint Information Systems Committee Health Citizen science Crowdsourcing World Wide Web Web 2.0 Mental health
39	POWERFUL PATIENT DATA: GENOMICS AND FAMILY HEALTH HISTORY IN HEALTH IT SALT LAKE CITY, UTAH \| MAY 30-31, 2013 DAY 1: THURSDAY, MAY 30, 2013 DAY 2: FRIDAY, MAY 31, 2013 Add to Reading List Source URL: www.geneticalliance.org Language: English - Date: 2013-10-02 14:45:07 Medical informatics Web 2.0 Mental health Clinical decision support system Decision theory Medical record Electronic medical record PatientsLikeMe Electronic health record Health Medicine Health informatics
40	ALS/PLS COSMOS Newsletter Vo l u m e 2 , I s s u e 2 Summer 2012 A Message from the Principal Investigator Hiroshi Mitsumoto, MD, DSc We just came back from the annual Investigators’ and Coordinators’ Meeting at the Add to Reading List Source URL: www.columbiaals.org Language: English - Date: 2014-09-12 04:41:04 Amyotrophic lateral sclerosis ALS Association PatientsLikeMe Primary lateral sclerosis Neurologist Mecasermin rinfabate Rare diseases Health Motor neurone disease

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