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Consultation response The Medical Innovation Bill Department of Health Response by Genetic Alliance UK, 24th AprilIntroduction
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Document Date: 2014-09-28 08:49:11

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File Size: 141,79 KB

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City

London / /

Country

United States / United Kingdom / /

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IndustryTerm

online registry / genuine applications / cohesive infrastructure / pharmaceutical / risk-proportional permission systems / /

MedicalCondition

cuts / rare diseases / hurt / disease / rare disease / 5Rare disease / injury / diseases / /

Organization

Genetic Alliance UK / Centre for the Advancement of Sustainable Medical Innovation / Services Commissioning Innovation Fund / European Medicines Agency / Medical Innovation Bill Department of Health Response / King’s Fund / Academy of Medical Sciences / Department of Health / NHS / /

Person

Alastair Kent / /

/

Position

Governor / Director Page / /

URL

www.gov.uk/government/uploads/system/uploads/attachment_data/file/260562/UK_Strategy_for_Rare_Diseases.pdf / www.clinicaltrials.gov/ct2/results/browse?term=eculizumab&brwse=ord_alpha_all / www.acmedsci.ac.uk/download.php?i=13646&f=file / www.geneticalliance.org.uk / www.geneticalliance.org.uk/docs/policy/the-manifesto-for-patient-driven-medical-innovation.pdf / www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/landing/orphan_search.jsp&mid=WC0b01ac058001d12b& source=homeMedSearch&keyword=eculizumab&isNewQuery=true / www.kingsfund.org.uk/sites/files/kf/Making-shared-decision-making-a-reality-paper-Angela-Coulter-Alf-Collins-July2011_0.pdf / /

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