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#	Item
271	ECD Global Alliance - Board of Directors Linda Adams, PhD[removed]Briarlake Ave Baton Rouge, LA[removed]Ph.D. in Microbiology (1987), B.S. in Microbiology (1981). Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2013-05-12 12:36:30 Biology Histiocytosis Rare diseases Erdheim–Chester disease Syndromes Pediatrics Inborn error of metabolism National Human Genome Research Institute Genetic disorder Health Medicine Medical genetics
272	2013 Year End Report Erdheim-Chester Disease Global Alliance “Supporting those affected by ECD” Greetings to all Members, families, and friends! Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-02-02 14:03:38 Syndromes ECD Medicine Health Erdheim–Chester disease Histiocytosis
273	ECD Newsletter no. 1 – July 2014 Task Team for Evaluation Capacity Development: Focus[removed]The OECD DAC EvalNet Task Team for evaluation capacity development (ECD) is focused on developing and improving partnershi Add to Reading List Source URL: www.oecd.org Language: English - Date: 2014-08-05 09:24:05 Sociology Science Development Multilateral development banks American Evaluation Association Independent Evaluation Group DAC Network on Development Evaluation Impact evaluation Capacity building Evaluation Evaluation methods Impact assessment
274	Summary of ECD Global Alliance Internet Chat 19 April[removed]Attendees  A member came on before the chat started and said that he had been diagnosed with ECD about 6 Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-06-13 09:50:20 Biopsy Antivirals Interferon National Institutes of Health Erdheim–Chester disease BRAF Influenza Medicine Health Cytokines
275	What is ECD?  A very rare disease that can affect many different organs. Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2010-12-31 09:31:10 Histiocytosis Syndromes Fabry disease Health Rare diseases Erdheim–Chester disease
276	ECD Global Alliance Organizational Status A nonprofit 501(c)(3) Organization May[removed]A Personal View Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2011-05-31 06:56:18 Syndromes Medicine Health Erdheim–Chester disease Histiocytosis
277	Summary of ECD Global Alliance Internet Chat on 12April2014 7 Attendees  Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-06-13 09:50:20 Histiocytosis Syndromes National Institutes of Health Interferon Vemurafenib Health Medicine Erdheim–Chester disease
278	Summary of ECD Global Alliance Internet Chat 17 May[removed]Attendees  We were told that it was a national holiday in Norway, Independence Day. Our Norwegian Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-06-13 09:50:20 Medical physics Erdheim–Chester disease Histiocytosis Syndromes Positron emission tomography Stroke Magnetic resonance imaging Vemurafenib National Institutes of Health Medicine Health Aging-associated diseases
279	Summary of ECD Global Alliance Internet Chat 28 Dec[removed]Attendees  A member left a message saying that he was having " Big problems with our internet Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2014-02-02 14:02:49 Cytokines Organochlorides Organofluorides Sulfonamides Vemurafenib Interferon BRAF Pain Peripheral neuropathy Anatomy Biology Medicine
280	Summary of ECD Global Alliance Internet Chat on 22nd June 2013 Add to Reading List Source URL: www.erdheim-chester.org Language: English - Date: 2013-08-03 17:33:12 Antivirals Interferon Erdheim–Chester disease Hairy cell leukemia Health Cytokines Medicine

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