Symptoms to Discuss with Your Doctor ECD can affect almost any organ in your body. This can lead to different kinds of problems. It is important to keep your doctor informed of any new symptoms you experience. By catchin

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• Exercise physiology
• Fatigue
• Symptoms
• Kidney
• Amyotrophic lateral sclerosis
• Cancer-related fatigue
• Health
• Medicine
• Rare diseases

Summary of ECD Global Alliance Internet Chat on 15 Jun[removed]Attendees  A member left a message before the Chat, telling us that they were going to a rehabilitation center for one month, next weekend. This was exciti

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• Healthcare in Australia
• Medicare
• Government

Julien Haroche, MD, PhD / Conversation with Member of ECD Global Alliance 17-Sep-2008 in Paris, France The following information is from Dr. Julien Haroche at Groupe Hospitalier Pitie-Salpetriere in Paris, France. This i

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• Syndromes
• ER
• Medicine
• Health
• Erdheim–Chester disease
• Histiocytosis

ECD Global Alliance Grant Review Process The ECD Global Alliance Grant Review Process is modeled after the NIH grant review process (see http://grants.nih.gov/Grants/peer_review_process.htm and http://grants2.nih.gov/gra

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• Bethesda
• Maryland
• Cancer research
• Nursing research
• Health
• Medicine
• National Institutes of Health
• Grants

A Pilot Study in the Treatment of ECD A pilot study in the treatment of Erdheim-Chester Disease is being conducted by Dr. Augusto Vaglio of Parma, Italy. He is studying the use of sirolimus (a drug most often used by tr

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• Immunosuppressants
• Rare diseases
• Syndromes
• Sirolimus
• Erdheim–Chester disease
• Immunosuppressive drug
• Kidney transplantation
• Prednisone
• Tacrolimus
• Medicine
• Health
• Macrolides

ECD Global Alliance, Inc. Photo Release Form I give permission to the ECD Global Alliance, Inc. to use my photo for promoting the work of the ECD Global Alliance. I understand my photo may be posted on the ECD Global All

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• Syndromes
• Alliance
• Medicine
• Health
• Erdheim–Chester disease
• Histiocytosis

Summary of ECD Global Alliance Internet Chat 8thJun2013 7 Attendees  A member was having some difficulties with arranging someone to look after their mother, who is “in bad shape”. It is a long drive to get to see

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Summary of ECD Global Alliance Internet Chat 4 Jan[removed]Attendees  A member came on early and left a message that she had been doing well until she started having bad dizzy spells. She said that she was very tired

Source URL: www.erdheim-chester.org

• Uric acid
• Breaking Bad
• Medicine
• Health
• Arthritis
• Gout
• Rheumatology

ECD GLOBAL ALLIANCE Supporting those affected by Erdheim-Chester Disease Disease Facts for Fund Raisers What is Erdheim-Chester Disease? Erdheim-Chester Disease (ECD) is a disorder in which particular types of cells the

Source URL: www.erdheim-chester.org

• Syndromes
• Medicine
• Health
• Histiocytosis
• Erdheim–Chester disease

OVERVIEW Trovagene is currently partnering with Memorial Sloan Kettering Cancer Center and MD Anderson on two clinical studies enrolling ECD patients to evaluate urine-based cellfree tumor DNA testing to diagnose BRAF mu

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• Oncogenes
• University of Texas MD Anderson Cancer Center
• Selumetinib
• Medicine
• Cancer organizations
• BRAF