patient advocacy / active and prominent patient advocacy / data mining / /
Organization
Chinese Organization for Rare Diseases / Scientific Secretariat / Matchmaker Task Force / Sci Comm / Task Force / Exec Comm / Interdisciplinary Scientific Committee / International Rare Diseases Research Consortium / EMA / Therapies Sci Comm / Scientific Advisory Board / Sci Comms / FDA / Genome / Executive Committee / EURORDIS / Renewals of Sci Comm / NORD / WG / Exec Comm and Sci Comms / U.S. Securities and Exchange Commission / Working Groups / Exec Comm and the Sci Comms / Global Alliance / 13th Executive Committee / /
Person
Michael Bamshad Milan Macek Interdisciplinary Sci Comm / Samantha Parker Therapies Sci Comm / Bartha Knoppers / Jeffrey Krischer / Jack Goldblatt Jeffrey Krischer Samantha / Jeffrey Krischer Samantha Parker Therapies / Milan Macek / Jan van Ommen Adam Heathfield / Michael Bamshad / Diego Ardigò / Sandrine Marreaud / Samantha Parker / Jack Goldblatt / Gene Matcher / /